Riley Pediatric Pulmonologist A. Ioana Cristea, M.D., explains Selena’s diagnosis―congenital central hypoventilation syndrome―as a rare, life-threatening condition that causes breathing problems, apnea or respiratory arrest during sleep.
Selena’s family found reassurance at Riley Hospital for Children at Indiana University Health. Only a month old at the time, Selena needed a tracheostomy to help her breathe―a terrifying prospect for parents Emily Cordero and Matthew Lipscomb. “We didn’t know when, or if, she would ever get her voice back,” Emily recalls. They credit the Riley staff, especially Selena’s nurses, with helping them through Selena’s six-month hospital stay.
Now looking forward to her third birthday in January 2022, Selena is an energetic toddler who talks nonstop and loves playing in water, dancing to Sesame Street and being outside. She had her feeding tube removed and now and now needs a ventilator only at night. “Thinking about where we were to where we are now, it’s just amazing, the progress Selena has made,” said Emily. “I can’t say enough about the love of the staff at Riley. They truly want the best for us and the best for our kids.”